ORCHID Annual Report 2023 - Flipbook - Page 17
This mixed-methods study has two phases. Phase one includes an online
survey completed by parents and CYP and a face-to-face visit at GOSH for
assessment of gross motor function. Phase 2 involves semi-structured
interviews with parents, and children and young people.
Waite G, Chugh D, Harniess P, Wray J, Oulton K, Cawker S (2024)
Translating research findings into co-designed, multimedia information for
families considering selective dorsal rhizotomy: A service improvement
project. Developmental Medicine and Child Neurology, Volume 66, Issue S2.
https://doi.org/10.1111/dmcn.15934
In the last year, Deepti has obtained ethical approval for both phases. She
has started data collection for Phase One. So far, 40 parents and 37 children
and young people have completed the online survey, and 30 children and
young people have taken part in the assessment at GOSH . Deepti has also
completed a scoping review looking at the outcomes used in the SDR
literature. The manuscript is currently under review in a peer-review journal.
Chugh D, Cawker S, Alderson L, Aquilina K, Main E (2024). Parents
reporting of quality of life during the 2 years after selective dorsal rhizotomy
in ambulant children with cerebral palsy; Developmental Medicine and Child
Neurology, Volume 66, Issue S4. https://doi.org/10.1111/dmcn.16088
ORCiD ID: 0000-0002-1002-0334
Chugh D, Kwiatkowska J, Waite G, Gimeno H, Kilbride C, Main E; Making
research meaningful: Involvement of children, young people and their
families in shaping the MOSAiC mixed-methods research study protocol on
outcomes following selective dorsal rhizotomy; European Academy of
Childhood Disability; Bruges, May 2024
Peer reviewed publications
Chugh D, Cawker SP, Katchburian L, Carr JL, Aquilina K, Morgan S,
Harding C (2024) 'Quality of Movement Changes in Ambulatory Children with
Cerebral Palsy 1 Year after Selective Dorsal Rhizotomy', Physiotherapy
Canada. https://doi.org/10.3138/ptc-2023-0020
Conference presentations
Chugh D. Findings of the scoping review of reported outcomes of SDR;
European Academy of Childhood Disability; Online; October 2024
Chugh D, Waite G, Harniess P, Oulton K, Wray J, & Cawker S. (2024) 8I
Didn9t Know What Was Going to Happen9: Children9s and Young People9s
Experiences and Their Involvement Before and After Selective Dorsal
Rhizotomy. Physical & Occupational Therapy In Pediatrics, 1–15.
https://doi.org/10.1080/01942638.2024.2323192
Chugh D. Two presentations on the Outcomes of SDR, Quality Function
Measure Outcomes and the findings of SDR Participatory research project.
Holland Bloorview Rehabilitation Centre, Toronto, Canada; October 2024
Filipow N, Bladen M, Raywood E, Robinson E, Chugh D, Douglas H, Thorpe
N, O'Connor R, Murray N, Main E (2024) Using reference equations to
standardise incremental shuttle walk test performance in children and young
people with chronic conditions and facilitate the evaluation of exercise
capacity
and
disease
severity.
BMJ
Open14(3):e075733.
https://doi.org/10.1136/bmjopen-2023-075733
Best poster award at European Academy of Childhood Disability; Bruges,
May 2024
Published abstracts
Chugh D, Main E, Waite G, Gimeno H (2024) What outcomes within domains
of the international classification of functioning, disability and health are
reported after selective dorsal rhizotomy procedure for ambulant children and
young people with cerebral palsy?: A scoping review of the last three
decades; Developmental Medicine and Child Neurology, Volume 66, Issue
S2. https://doi.org/10.1111/dmcn.15935
Awards
Fan Lek Cheng
Indep. Presc. MPharm MScApp MFRPSII
NIHR Fellowship: Clinical Doctoral Research Fellowship, Institute of
Child Health/GOSH
Study title: Pharmacokinetic population modeling for personalised medicine
in paediatric immunodeficiencies and haematopoietic stem cell
transplantation patients : a focus on immunoglobulin, ciclosporin, and
favipiravir
Supervisors: Professor Joseph Standing, Dr Austen Worth, Professor Claire
Booth
