ORCHID Annual Report 2023 - Flipbook - Page 25
PCAF Students
PCAF students during 2024:
Students:
Agnieszka Szmurlo
Annette Hill
Study Title:
Acyl carnitine as a predictor of response to ketogenic diet
therapy for drug-resistant epilepsy.
How can health services support families understanding, and
communication related to a child’s Differences in Sex
Development (DSD) condition: Identifying potential barriers
and facilitators to positive communication from the family and
clinician perspectives.
How can we optimise the donor search pathway?
Anna Christie
Transition from clinical trial -children and families experiences
Anita Freeman
Kristy O9Connor
Lauren Cheng
Experiences and challenges with breastfeeding
for parents with babies who have a cleft palate
Congenital hyperinsulinemia
Munsur Ahmed
Medication 3D printing
Natalie Smith
Non-pharmaceutical intervention for
assessing and managing procedural anxiety
for paediatric patients receiving intrathecal
treatment
Blended diet in immunocompromised children
Shelley Cleghorn
Brittany Rothman
VAD feeding experience & outcomes
Claire Gaymer
The impact of health inequalities in the healthcare transition of
adolescent kidney transplant recipients.
Danielle Lambert
Psychological Factors in the Treatment of Avoidant Restrictive
Food Intake Disorder
David Snell
Development and optimisation of an acoustic based paediatric
MRI elastography system.
Dawn Cutler
How does a Therapeutic Milieu in inpatient mental health
treatment enable change for children?
Dawn Goodacre
8When implementing Early Rehabilitation and Mobilisation
(ERM) within Paediatric Intensive Care, What works for whom
and in What Context?
Emma Douglas
Co-designing and refining an intervention to support families
with rare disease following a genomic diagnosis.
Rapid Genome sequencing -during oncology neurosurgery
Julian CanoFlanagan
Outputs:
Peer reviewed publications
Ahmed M, Tomlin S, Tuleu C, Garfield S.(2024) Real-World Evidence of
3D Printing of Personalised Paediatric Medicines and Evaluating Its
Potential
in
Children
with
Cancer:
A
Scoping
Review.
Pharmaceutics.14;16(9):1212.
https://doi.org/10.3390/pharmaceutics16091212
Bancroft EK., Page EC, Brook MN, Pope J, Thomas S, Myhill K, Helfand
BT, Talaty P, Ong K-R, Douglas E, Cook J, Rosario DJ, Salinas M, Buys
SS, Anson J, Davidson R, Longmuir M, Side L, Eccles DM, Tischkowitz
M, Taylor A, Cruellas M, Ballestero EP, Cleaver R, Varughese M, Barwell
J, LeButt M, Greenhalgh L, Hart R, Azzabi A, Jobson I, Cogley L, Evans
DG, Rothwell J, Taylor N, Hogben M, Saya S, IMPACT Study Steering
Committee, IMPACT Collaborators, Lilja H. (2024) The psychosocial
impact of prostate cancer screening for BRCA1 and BRCA2 carriers BJU
international, https://doi.org/10.1111/bju. 16432
