ORCHID Annual Report 2023 - Flipbook - Page 31
Phillip Harniess
PhD, MSc, BSc (Hons), AFHEA, MCSP
Appointments:
Great Ormond Street Hospital for Children NHS Foundation Trust – Research
Fellow on the Seen and Be Heard Study
They worked with illustrators Jake Abrams and Georgina Potier at Kingston
University to co-design a research journal for the study. At the end of 2024,
Phill had the opportunity to move to work on a new project a large NIHR
funded national trial called the Children9s Early Self-Care Support (CHESS)
trial, being run out of Newcastle.
Northumbria University – Research Associate on the Children9s Early SelfCare Support (CHESS) trial
Digital Profile:
ORCID ID: 0000-0003-3609-7556
Research gate: https://www.researchgate.net/profile/Phillip_Harniess
Other affiliations:
Peer Reviewed Publications:
University of Exeter, The Peninsula Childhood Disability Research Unit,
Research Associate
J. Russell, J., Chan, E. Y., Davies, G., Gibson, F., Harniess, P., Rendle, G.,
and Wray, J. (2024). Developing and testing a toolkit of interventions to
improve adherence to non-invasive ventilation in children: the SPIRITUS
study protocol. BMJ Open, 2024; Vol. 14 Issue 11 Pages e090570.
https://doi.org/10.1136/bmjopen-2024-090570
UCL (IOE) Faculty of Education and Society, Honorary Post-Doctoral
Research Associate
Phill is a post-doc clinical academic physiotherapist and Health Education
England / National Institute for Health Research (HEE/NIHR) Clinical Doctoral
Research Fellow alumni. His research interests broadly include child
neurodisability, family-centred care, health equity and parent carer wellbeing.
In his approach he predominantly uses participatory qualitative methods
through an applied health sociological lens. His PhD thesis (completed in
2023) explored parent and therapist engagement in early intervention
occupational and physiotherapy for infants with cerebral palsy. He continued to
be involved in various research committees, the British Academy of
Community Child Health and two early career researcher forums; the
European Academy of Childhood Disability and the NIHR North Thames ARC.
Over the course of 2024, Phill worked on the Seen and Be Heard Study within
Orchid a study led by Chief Investigator Dr Kate Oulton, and a wider GOSH
team including Prof. Faith Gibson, Dr Jo Wray, Dr Anupama Rao, Mary FouCavallero (Nurse), Lois Watson (LD nurse), Lily Hearn (Senior play specialist)
and Dr Rebecca Sweet (psychologist). The Seen and Be Heard study is a
multiphase study aiming to improve equity in cancer care for all children and
young people, including those with a learning disability or who are autistic. In
the first phase, he led work around a retrospective case note review and
national staff survey. Working closely with Dr Kate Oulton and the study team,
including a group of dedicated families with lived experience (public patient
involvement group), he supported the set up of the main study work package,
an ethnography, which will begin data collection in 2025. One highlight in this
process, was partnering with children and young people, including some
members with Special Educational Needs.
Harniess P, McGlinchey C, McDonald A, Boyle F, Garrood A, Logan S, Morris
C, and Borek AJ. (2024) Ensuring equitable access, engagement and ability
of socially and ethnically diverse participants to benefit from health promotion
programmes: a qualitative study with parent carers of disabled children.
Frontiers
in
Public
Health.
2024;
12.
https://doi.org/10.3389/fpubh.2024.1445879
McGlinchey C, Harniess P, Borek AJ., Garrood A, McDonald A, Boyle F,
Logan S, Morris C. (2024) What aspects of health and wellbeing are most
important to parent carers of children with disabilities? Health Expectations;
27:e14085. https://doi.org/10.1111/hex.14085
Massey J, Harniess P, Chinn D, Robert G. (2024) Barriers and facilitators to
parent-delivered interventions for children with or infants at risk of cerebral
palsy. An integrative review informed by behaviour change theory. Disability
and
Rehabilitation,
47(2),
287–301.
https://doi.org/10.1080/09638288.2024.2338193
Published Abstracts:
McGlinchey C, Harniess P, Borek AJ, Garrood A, McDonald A, Boyle F,
Logan S, Morris C, (2024) Healthy parent carers: How do parents understand
their health and well-being in relation to established health and well-being
outcomes? Developmental Medicine & Child Neurology 6 (S2): 46.
https://doi.org/10.1111/dmcn.15934
