ORCHID Annual Report 2023 - Flipbook - Page 33
Invited talks:
Shkurka E. Early rehabilitation and mobilisation on ECMO: Friend or Enemy,
World Federation of Pediatric Intensive and Critical Care Societies Congress,
Cancun, June 2024
Shkurka E. Paediatric pre- and post-transplant rehabilitation: Considerations
and implementation, World Federation of Pediatric Intensive and Critical Care
Societies Congress, Cancun, June 2024
Research Faculty
Jessica Russell
Study title: Developing and testing a toolkit of interventions to improve
adherence to non-invasive ventilation in children: a mixed methods study (The
SPIRITUS study)
Co-PIs: Jessica Russell and Professor Jo Wray
Shkurka E. Rehabilitation during ECMO, EuroELSO, Krakow, April 2024
Grants:
Shkurka E. £56,873 -NIHR Great Ormond Street Hospital BRC award –
Intermediate Fellowship for Wider Health Care Professionals, Sept 2024-Feb
2026
Shkurka E. £234 - GOSH BRC Junior Faculty Conference and Training
Support Fund May 2024
January 2022 – October 2025
Summary: SPIRITUS is a mixed-methods study following the revised Medical
Research Council framework. We aim to identify the components of a toolkit of
behavioural, educational and organisational interventions to address some of
the barriers to NIV adherence and evaluate the interventions9 feasibility and
acceptability to families. We also aim to identify appropriate outcome
measures.
Project Aims:
Aim 1: to identify a range of theoretically informed educational, behavioural,
organisational and/or environmental interventions for a toolkit to use with
children and young people requiring NIV and their families.
Research questions
• What interventions exist to address adherence to NIV in children and young
people?
• How effective are these identified interventions for improving children9s and
young people9s NIV adherence?
• In what contexts has improved adherence occurred?
Aim 2: to test the identified interventions to assess their feasibility and
acceptability.
Research questions
• Are identified interventions acceptable to parents and children and young
people?
• Are identified interventions feasible for parents and children and young
people?
Outcome measures
Aim 3: to identify salient outcomes of NIV use and their metrics for children
and young people and their families
