ORCHID Annual Report 2023 - Flipbook - Page 4
on physical activity, readiness for self-management and transition. Outcomes
in children undergoing SDR is an ongoing focus driven by work undertaken by
Deepti Chugh as part of her PhD.
Digital profile:
ORCiD ID: 0000-0002-3181-5857
Google Scholar:
https://scholar.google.com/citations?user=Sx3DhDEAAAAJ&hl=en
Research Gate: https://www.researchgate.net/profile/Lucy-Alderson-3
Dr Paula Kelly
(PhD, PGCE, MSc, BA (hons) Registered Nurse Tutor,
RSCN, SRN)
cancer during and post treatment.
Secondary Aim: To document the types, effects and outcomes of interventions
to facilitate access to education, including school re-entry and return to school
programs for children and adolescents with cancer during and post
treatment?
Progress: This year we continued with data extraction on the 320 papers that
met our inclusion criteria. (Work on the project was paused June-August
whilst Paula was on a career break).
Professor Gibson led a successful funding application for funding to the Great
Ormond Street Children9s Charity-Lift -off grant programme.
Grant Funding: CCLG (For consultation event for families and professionals
of scoping review findings)
Study Title: Childhood Cancer Education
Project 2. Returning to school-what helps and hinders children with cancer.
Co-Investigators: Professor Faith Gibson (PI), Dr Gemma Byran (Co-PI), Dr
Paula Kelly, Dr Christina Kliuchkivska.
Co-Investigators: Professor Faith Gibson (PI), (Co-PI), Dr Paula Kelly, Dr
Gemma Byran, Dr Christina Kliuchkivska, Ms Rochelle Lowe.
May 2020-June 2025
Project Summary. A single site case study to examine what getting back to
school looks like for children with cancer aged 4-11 years, the largest cohort .
To understand the experiences of those receiving their care at GOSH,
including finding out about use of digital and remote learning methods. This
will help us to see what helps and hinders barriers from the perspective of key
people, parents/carers, children, healthcare professionals, and educational
professionals. That will help is to develop a survey to examine approaches to
going back to school undertaken at all other Principal Treatment Centres in
the UK and Ireland.
Summary: This is a planned series of studies investigating children and young
people9s and experiences of education following a diagnosis of cancer. Cancer
and education services recognise a need to better understand the associated
bio-psychosocial impact of diagnosis and treatment for children and
adolescents, mindful of the increasing incidence of childhood cancer and
improvements in survival. Only through improved understanding and effective
interventions to mitigate identified detrimental effects can the full benefits of
survival be realised by children, adolescents and their families.
These investigations aim further to develop guidance and understanding of the
interventions that will support children and young people9s access to positive
experiences of education and learning during and beyond cancer treatment.
Project 1: Access to and experience of education for children and adolescents
with cancer
Project Summary: This study comprises a scoping review of the literature
followed by a consultation exercise with children and young people with
cancer, their families, educators and health care professionals.
Primary Aim: To identify what is known from the existing literature about the
access to and experience of education for children and adolescents with
Primary Aims:
1.To examine school reintegration for children with cancer aged 4-11 years
receiving their care at Great Ormond Street Hospital, including the digital
resources utilised.
2. To explore potential barriers and facilitators for children returning to school,
from the perspective of key stakeholders, parents/carers, children, healthcare
professionals, and educational professionals.
Secondary Aims:
1.Develop a survey to examine approaches to school reintegration
undertaken at Principal Treatment Centres in the UK and Ireland.
