ORCHID Annual Report 2023 - Flipbook - Page 7
Polly is an amazing leader and an inspiration, and her dedication to her work
is a motivating factor for me to try harder to help her deliver the IMPACT
study. I am honoured to be accepting the UK Rare Diseases PPIE award on
her behalf in March 2025 in Manchester and we are due to start our
collaboration with SickKids in Toronto to help us understand whether our
findings from our UK cohorts are also representative in Canada and this work
could foster future collaborations. This add on work to the IMPACT study is
funded through our successful grant application to the 8University College
London – University of Toronto Strategic Challenges Fund Grant9, of which
only 5 were successful from the 26 that applied. We have also published our
protocol paper and have another two papers under review, of which I am lead
author on our Systematic review. I am intrigued to see what the future still
holds and what the next steps for the IMPACT study will look like.
Peer reviewed publications
Lau C, Kupiec, K, Livermore P. (2024). Exploring the Acceptance and
Opportunities of Using a Specific Generative AI Chatbot to Assist Families in
Managing Paediatric Rheumatological Chronic Health Conditions: A MixedMethods Study. Journal of Medical Internet Research Preprints:70409.
https://preprints.jmir.org/preprint/70409
Zhang Z, Kean IR, Dratva, LM, Clark JA., Syrimi E, Khan N, Daubney E,
White D, O9Neill L, Chisholm C, Payne C, Benkenstein S, Kupiec K, Galassini
R, Wright V, Winmill H, Robbins C, Brown K, Ramnarayan P, Pathan N.
(2024). Enhanced CD95 and interleukin 18 signalling accompany T cell
receptor Vβ21. 3+ activation in multi-inflammatory syndrome in
children. Nature
Communications, 15(1),
4227.
https://doi.org/10.1038/s41467-024-48699-y
Published abstracts
Clay E, Bolton C, Smith C, McNeece A, Sultan S, Kelly J, Khan N, Alexiou V,
Kupiec K, Turtsevich I, Foley C, Pils C, Mahony C, Hackland A, Adams H,
Powell E, Nguyen H, Thyagarajan M, Sheikh Z, Croft A (2024). PT91 Synovial
tissue biopsies for the purpose of research in the UK tissue research in
childhood arthritis consortium. Pediatric Rheumatology, 22(2), PReS24-ABS1678. https://doi.org/10.1186/s12969-024-01004-z
GOSH conference abstracts
Kupiec K, Livermore P. 8Working in partnership – Improving outcomes
through PPIE9. GOSH Conference, UK, November 2024
Conference presentations:
Kupiec K, Livermore P. 89I have never spoken to anyone about this before99:
Giving fathers an opportunity to share their experiences. 31st European
Paediatric Rheumatology Congress (PReS), Sweden, September 2024
Awards:
Kupiec K, Livermore P. People9s Choice Award. 8Working in partnership –
Improving outcomes through PPIE9 presented by KK. GOSH Conference, UK,
November 2024
Kupiec K, Livermore P. Best oral presentation for Health Professionals
Award. 8Giving fathers an opportunity to share their experiences9 presented by
KK. 31st European Paediatric Rheumatology Congress (PReS), September
2024
Invited talks:
Livermore, P. & Kupiec, K. 89I just wish someone had said we9d be OK99 –
asking parents what further support they want – The IMPACT Study31st
European Paediatric Rheumatology Congress (PReS), Sweden, September
2024
