ORCHID Annual Report 2024 - Flipbook - Page 10
3. Spotlight on a Researcher
Klaudia Kupiec
MSc
Great Ormond Street Hospital, UCL
Research Facilitator for the IMPACT study
I have been working as Research Facilitator on Polly9s IMPACT study since
September 2023. The IMPACT study aims to design, develop, and test a
chatbot intervention for parents and carers of children and young people with
rheumatological conditions, and it is co-designed with our Steering Group as
well as our expert parents every step of the way.
I have been working across various research roles at Great Ormond Street
Hospital since I joined the Trust in 2021. I am currently also a Research
Coordinator working in the Paediatric Rheumatology team. I have a MSc in
Child Psychology which I completed at Kingston University in 2017 and I have
a background working in Child and Adolescent Mental Health Services
(CAMHS) supporting children, young people, and their families with the goal to
improve their mental health and well-being. It is my background in mental
health that originally attracted me to Polly9s study, and it has been a wonderful
experience ever since.
Working with Polly has created many exciting opportunities. As R&I Research
Coordinator, I don9t have the same opportunities in terms of career
development and progression and I am not able to be actively involved in
research as we don9t get to analyse the data we collect, however, working in
my role as Research Facilitator, I have been able to submit abstracts and have
had the opportunity to go to our European Paediatric Rheumatology Congress
(PReS) last year in Gothenburg where I won the 8Best oral presentation for
Health Professionals Award9 which means I can go back to PReS this year in
Helsinki as invited and funded registrant.
The most rewarding experience is working along with our Steering Group and
expert parents and seeing how their feedback shapes the project. Therefore,
seeing our PPIE (Public Patient Involvement and Engagement) work win us the
People9s Choice award at the GOSH conference in November last year has
been very rewarding as it validates the contributions from our PPIE
representatives.
Polly is an amazing leader and an inspiration, and her dedication to her work is
a motivating factor for me to try harder to help her deliver the IMPACT study.
I am honoured to be accepting the UK Rare Diseases PPIE award on her
behalf in March 2025 in Manchester and we are due to start our collaboration
with SickKids in Toronto to help us understand whether our findings from our
UK cohorts are also representative in Canada and this work could foster
future collaborations. This add on work to the IMPACT study is funded
through our successful grant application to the 8University College London –
University of Toronto Strategic Challenges Fund Grant9, of which only 5 were
successful from the 26 that applied. We have also published our protocol
paper and have another two papers under review, of which I am lead author
on our Systematic review. I am intrigued to see what the future still holds and
what the next steps for the IMPACT study will look like.
Peer reviewed publications
Lau C, Kupiec, K, Livermore P. (2024) Exploring the Acceptance and
Opportunities of Using a Specific Generative AI Chatbot to Assist Families in
Managing Paediatric Rheumatological Chronic Health Conditions: A MixedMethods Study. Journal of Medical Internet Research Preprints:70409.
https://preprints.jmir.org/preprint/70409
Zhang Z, Kean IR, Dratva, LM, Clark JA., Syrimi E, Khan N, Daubney E,
White D, O9Neill L, Chisholm C, Payne C, Benkenstein S, Kupiec K,
Galassini R, Wright V, Winmill H, Robbins C, Brown K, Ramnarayan P,
Pathan N. (2024) Enhanced CD95 and interleukin 18 signalling accompany T
cell receptor Vβ21. 3+ activation in multi-inflammatory syndrome in
.
children. Nature Communications, 15(1), 4227.
https://doi.org/10.1038/s41467-024-48699-y
Published abstracts
Clay E, Bolton C, Smith C, McNeece A, Sultan S, Kelly J, Khan N, Alexiou V,
Kupiec K, Turtsevich I, Foley C, Pils C, Mahony C, Hackland A, Adams H,
Powell E, Nguyen H, Thyagarajan M, Sheikh Z, Croft A (2024) PT91 Synovial
tissue biopsies for the purpose of research in the UK tissue research in
childhood arthritis consortium. Pediatric Rheumatology, 22(2), PReS24-ABS1678. https://doi.org/10.1186/s12969-024-01004-z
Conference presentations:
Kupiec K, Livermore P. 89I have never spoken to anyone about this before99:
Giving fathers an opportunity to share their experiences. 31 st European
Paediatric Rheumatology Congress (PReS), Sweden, September 2024
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