ORCHID Annual Report 2024 - Flipbook - Page 17
Clinical Academic Faculty
Current PhD Students:
Joanne Brind
MSc, RGN, RSCN, PGCert Non-Medical Prescribing, Dip (Remote
nursing)
NIHR Clinical Doctoral Research Fellowship, University College London
Study title: Clinical and patient reported long-term outcomes in children with
paediatric intestinal pseudoobstruction: a UK multi-centre study
Supervisors: Professor Jo Wray, Dr Helen Baker, Dr Osvaldo Borrelli
April 2018 – September 2025 (Studies Suspended)
•To understand how the functional and orthopaedic outcomes correlate with
CYP and their parents9 perceptions, experiences and quality of life 3-10 years
after SDR surgery.
This mixed-methods study has two phases. Phase one includes an online
survey completed by parents and CYP and a face-to-face visit at GOSH for
assessment of gross motor function. Phase 2 involves semi-structured
interviews with parents, and children and young people.
In the last year, Deepti has obtained ethical approval for both phases. She
has started data collection for Phase One. So far, 40 parents and 37 children
and young people have completed the online survey, and 30 children and
young people have taken part in the assessment at GOSH . Deepti has also
completed a scoping review looking at the outcomes used in the SDR
literature. The manuscript is currently under review in a peer-review journal.
ORCiD ID: 0000-0002-1002-0334
Peer reviewed publications
Deepti Chugh
MRes, MSc., B. Physiotherapy
NIHR Doctoral Clinical and Practitioner Academic Fellowship, GOSH
Institute of Child Health, UCL
Study title: Medium to long-term outcomes of selective dorsal rhizotomy in
ambulatory children and young people with cerebral palsy: A mixed methods
study
Supervisors: Professor Eleanor Main, Professor Cherry Kilbride, Dr
Hortensia Gimeno, Mr Kristian Aquilina
June 2023 - May 2026
The main purpose of this study is to investigate the medium to long-term
outcomes (3-10 years) after Selective Dorsal Rhizotomy (SDR) in ambulatory
children and young people with cerebral palsy. The primary research
objectives are:
•To determine the functional, orthopaedic and quality of life outcomes three
to ten years after SDR in ambulatory children and young people with cerebral
palsy.
•To explore children and young people9s and parents9 experiences of SDR
and rehabilitation three to ten years after SDR in relation to their prior
expectations and subsequent outcomes.
Chugh D, Cawker SP, Katchburian L, Carr JL, Aquilina K, Morgan S,
Harding C. (2024) 'Quality of Movement Changes in Ambulatory Children with
Cerebral Palsy 1 Year after Selective Dorsal Rhizotomy', Physiotherapy
Canada. https://doi.org/10.3138/ptc-2023-0020
Chugh D, Waite G, Harniess P, Oulton K, Wray J, & Cawker S. (2024) 8I
Didn9t Know What Was Going to Happen9: Children9s and Young People9s
Experiences and Their Involvement Before and After Selective Dorsal
Rhizotomy. Physical & Occupational Therapy In Pediatrics, 1–15.
https://doi.org/10.1080/01942638.2024.2323192
Filipow N, Bladen M, Raywood E, Robinson E, Chugh D, Douglas H, Thorpe
N, O'Connor R, Murray N, Main E. (2024) Using reference equations to
standardise incremental shuttle walk test performance in children and young
people with chronic conditions and facilitate the evaluation of exercise
capacity
and
disease
severity.
BMJ
Open14(3):e075733.
https://doi.org/10.1136/bmjopen-2023-075733
Published abstracts
Chugh D, Main E, Waite G, Gimeno H. (2024) What outcomes within
domains of the international classification of functioning, disability and health
are reported after selective dorsal rhizotomy procedure for ambulant children
and young people with cerebral palsy?: A scoping review of the last three
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