ORCHID Annual Report 2024 - Flipbook - Page 28
families of children with an intellectual disability referred to specialist NHS
mental health services. The study was a collaboration between Tavistock &
Portman NHS Trust and UCL, led by Professor Vaso Totsika and ran from
August 2022 until the end of 2024.
Digital Profile:
ORCID ID: 0000-0001-6064-6493
Peer Reviewed Publications
Kohn C, Turner L, Yang Z, Absoud M, Casbard A, Gomes M, Grant G,
Hassiotis A, Kennedy E, Levitt S, McNamara R, Randell E, Totsika V. (2024)
Remotely Delivered Video Interaction Guidance for Families of Children With
an Intellectual Disability Referred to Specialist Mental Health Services:
Protocol for a Feasibility Randomized Controlled Trial. JMIR Research
Protocols, 13, e54619. doi:10.2196/54619
Totsika V, Yang Z, Turner L, Kohn C, Hassiotis A, Kennedy E, Absoud M,
McNamara R, Randell E, Levitt S, Grant G, Casbard A, Jacobs L, Di Santo C,
Buckley C, Hignett E, Liew A. (2024) Mapping the pathway and support
offered to children with an intellectual disability referred to specialist mental
health services in the UK. BJPsych Bulletin, 1–6. doi:10.1192/bjb.2024.63
Post-Doctoral Researchers
Dr Lesley Katchburian
PhD, MSc, BSc (Hons), MCSP, FAPCP
Consultant Physiotherapist in Paediatric Neurodisability, Neurosciences
Great Ormond Street Hospital for Children NHS Foundation Trust
Honorary Clinical Lecturer UCL Great Ormond Street Institute of Child
Health
Lesley is a Consultant Physiotherapist and post-doctoral clinical academic
physiotherapist. Her research interests include evaluating the management of
abnormal tone in children and young people with movement disorders, using
outcome measures important to children and families. She is a Health
Education England / National Institute for Health Research (HEE/NIHR)
Clinical Doctoral Research Fellow alumni. Her PhD thesis (completed in 2023)
used mixed methods to evaluate the long-term use of Botulinum Toxin
Neurotoxin A treatment in ambulant children and young people with Cerebral
Palsy.
Lesley continues to co-lead the Physiotherapy Movement Disorders Service
and Botulinum Toxin Service at GOSH and is Physiotherapy research lead for
the Neurodisability Service. She is currently supervising NIHR PCAF students,
AHP MSc candidates at UCL and is clinical academic mentor for two NIHR
funded Doctoral students.
She continues to work with the Oxford Clinical Trials Unit as co-investigator on
two NIHR HTA funded National RCTs SPELL and ROBUST. At GOSH she
also works alongside Professor Manju Kurian, Dr Lucinda Carr, and Mr
Kristian Aquilina as a member of the research team involved with the Upstaza
(eladocagene exuparvovec) trial - an NHS England funded gene therapy trial
for children with Aromatic L-amino acid decarboxylase deficiency (AADCd).
Lesley continues to be part of the national expert panel of Getting it Right First
Time (GIRFT). Contributing to a national consultation on the use of Botulinum
Toxin A treatment in cerebral palsy. She is also on the board of the Strategic
Research Group (SRG) of the British Academy of Childhood Disability. The
SRG encourages debate and promotes research into the many outstanding
questions in childhood disability. Lesley is Chair of the paediatric British
Neurotoxin Network (pBNN) which evaluates and promotes best practice in
the field of tone management in paediatric movement disorders.
Digital Profile:
ORCiD ID: 0000-0002-7523-7083
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