ORCHID Annual Report 2024 - Flipbook - Page 37
Lanis A, Alexanderson H, Ardalan K, Edison S, Graham CD, de Groot I,
Gupta L, Kim S, Knight AM, Kobert L, Livermore P. (2024) Mental health in
paediatric and adult myositis-related diseases: current state of research,
interventions, and future steps from the MIHRA Psychological Impact
Scientific Working Group. Clinical and Experimental Rheumatology.
14;42(2):413-24.https://doi.org/10.55563/clinexprheumatol/cngdfn
Ondruskova T, Oulton K, Royston R, Group E-IR, Hassiotis A. (2024)
Process evaluation of a parenting intervention for pre-schoolers with
intellectual disabilities who display behaviours that challenge in the UK.
Journal of Applied Research in Intellectual Disabilities, 37(5), e13263.
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Livermore P, Kupiec K, Wedderburn LR, Knight A, Solebo AL, Shafran R,
Robert G, Sebire NJ, Gibson F, IMPACT Steering Group. (2024) Designing,
developing and testing a chatbot for parents and carers of children and
young people with rheumatological conditions (the IMPACT study): Protocol
for a co-designed proof of concept study Journal of Medical Internet
Research Research Protocols. 13:e57238. https://doi.org/doi10.2196/57238
Ondruskova T, Royston R, Absoud M, Ambler G, Qu C, Barnes J, Hunter R,
Panca M, Kyriakopoulos M, Oulton K, Paliokosta E, Sharma AN, Slonims V,
Summerson U, Sutcliffe A, Thomas M, Dhandapani B, Leonard H, Hassiotis
A. (2024) Clinical and cost-effectiveness of an adapted intervention for
preschoolers with moderate to severe intellectual disabilities displaying
behaviours that challenge: the EPICC-ID RCT. Health Technology
Assessment, 28(6), 1-94 https://doi.org/10.3310/JKTY6144
Nafees Z, Ferreira J, G Elena, Wray J, Anderzén-Carlsson A, Poenaru D.
(2024) Adaptation, Translation, and Validation of a Patient-Reported
Experience Measure for Children and Young People for the Canadian
Context, Journal of
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817.
https://doi.org/10.1016/j.jpedsurg.2024.01.030
Oulton K, Gibson F, Kenten C, Russell J, Carr L, Hassiotis A, Kelly P,
Kerry S., Tuffrey-Wijne I, Whiting M, Wray J. (2024) Being a child with
intellectual disabilities in hospital: The need for an individualised approach to
care. Journal of Applied Research Intellectual Disabilities, 37(1), e13153.
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Ndosi M, Livermore P. (2024) Beyond aches and pain: the hidden economic
burden of musculoskeletal conditions in children and adolescents. Evidence
Based Nursing, https://doi.org/10.1136/ebnurs-2023-103891
Pearson H, Gibson F, Myall M, Darlington AS. (2024) Exploring Parent
Treatment Decision-Making in Relapsed and Refractory Neuroblastoma: A
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http://dx.doi.org/10.1016/j.ssmqr.2024.100487
Nordlind A, Anderzén-Carlsson A, Sundqvist AS, Ängeby K, Wray J, Oldham
G, Ann-Charlotte Almblad AC. (2024) Translation, cultural adaptation and
validation of a patient-reported experience measure for children, Health
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O9Connor AM, Cassedy A., Cohen M, Goldberg C, Lamour J, Mahle W,
Mahony L, Mussatto K, Newburger J, Richmond ME, Shah M, Allen K, Wolfe
B, Wernovsky G, Wray J, Marino BS. (2024) Demonstrating responsiveness
of the pediatric cardiac quality of life inventory in children and adolescents
undergoing arrhythmia ablation, heart transplantation, and valve
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O'Connor G, Van Der Linde M, Capriles ZH. (2024) The impact of lowenergy, partially hydrolysed enteral formula on gastrointestinal symptoms
and weight in children with neurological impairment: a multicentre
retrospective study. Journal of Human Nutrition and Dietetics, 37(4), 919926. https://doi.org/10.1111/jhn.13305
Pearson H, Bell C, Cox K, Kayum C, Knox L, Gibson F, Myall M, Darlington
AS, Potter E, Bird N. (2024) Integration of patient and public involvement in a
doctoral research study using the research cycle. Research Involvement and
Engagement. 10(87) https://doi.org/10.1186/s40900-024-00620-z
Phillips CA, Kennelly R, Carroll C, Gibson F, Elgarten C, Orsey A,
Freedman J. (2024) Survey of international pediatric nutritional supportive
care practices: a report from the Pediatric Study Group of the Multinational
Association of Supportive Care in Cancer (MASCC). Support Care
Cancer. 32(644) https://doi.org/10.1007/s00520-024-08826-3
Eilon T, Pujar S, Smith AN, Black B, Alderson L, Gordon J, Alwis,
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therapeutic neuropsychiatry assessment for paediatric functional symptoms.
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Medicine & Child Neurology, 66: 5-17. https://doi.org/10.1111/dmcn.15825
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