ORCHID Annual Report 2024 - Flipbook - Page 4
May 2020-June 2025
Summary: This is a planned series of studies investigating children9s and
young people9s experiences of education following a diagnosis of cancer.
Cancer and education services recognise a need to better understand the
associated bio-psychosocial impact of diagnosis and treatment for children
and adolescents, mindful of the increasing incidence of childhood cancer and
improvements in survival. Only through improved understanding, and effective
interventions to mitigate identified detrimental effects, can the full benefits of
survival be realised by children, adolescents and their families.
These investigations aim further to develop guidance and understanding of the
interventions that will support children and young people9s access to positive
experiences of education and learning during and beyond cancer treatment.
Project 1: Access to and experience of education for children and
adolescents with cancer
Project Summary: This study comprises a scoping review of the literature
followed by a consultation exercise with children and young people with
cancer, their families, educators and health care professionals.
Primary Aim: To identify what is known from the existing literature about the
access to and experience of education for children and adolescents with
cancer during and post treatment.
Project Summary. A single site case study to examine what getting back to
school looks like for children with cancer aged 4-11 years, the largest cohort.
To understand the experiences of those receiving their care at GOSH,
including finding out about use of digital and remote learning methods. This will
help us to see what helps and hinders barriers from the perspective of key
people; parents/carers, children, healthcare professionals, and educational
professionals. That will help is to develop a survey to examine approaches to
going back to school undertaken at all other Principal Treatment Centres in the
UK and Ireland.
Primary Aims:
1.To examine school reintegration for children with cancer aged 4-11 years
receiving their care at Great Ormond Street Hospital, including the digital
resources utilised.
2. To explore potential barriers and facilitators for children returning to school,
from the perspective of key stakeholders; parents/carers, children, healthcare
professionals, and educational professionals.
Secondary Aims:
1.To develop a survey to examine approaches to school reintegration
undertaken at Principal Treatment Centres in the UK and Ireland.
2. To inform approaches to data collection to be used in a multiple case study.
Secondary Aim: To document the types, effects and outcomes of interventions
to facilitate access to education, including school re-entry and return to school
Progress: The charity notified the team of the successful application in
November 2024. We have commenced planning the Patient and Public
programs for children and adolescents with cancer during and post treatment?
Progress: This year we continued with data extraction on the 320 papers that
met our inclusion criteria. (Work on the project was paused June-August whilst
Paula was on a career break).
involvement and Engagement (PPIE) work for the project. This will include
children, parents and school staff advising the research team on all aspects of
the project-prior to developing the study protocol and gaining governance and
ethical permissions in 2025.
Professor Gibson led a successful funding application for funding to the Great
Ormond Street Children9s Charity-Lift -off grant programme.
July 2025-September 2026
Great Ormond Street Hospital Charity: Lift off
Grant Funding: CCLG (For consultation event for families and professionals
of scoping review findings)
Digital profile:
ORCiD ID:0000-0002-0581-547
Project 2. Returning to school-what helps and hinders children with cancer.
Co-Investigators: Professor Faith Gibson (PI), (Co-PI), Dr Paula Kelly, Dr
Gemma Byran, Dr Christina Kliuchkivska, Ms Rochelle Lowe.
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