ORCHID Annual Report 2024 - Flipbook - Page 7
Highlights of this year
1.ORCHID Conference 2024
This year our ORCHID Conference focused on addressing health inequalities
and inequities in research. It was attended by over 130 people from across the
UK.
the death of a child (Tara Kerr-Elliott). We ended the day with examples of
accessible research outputs co-produced with children and young people
such as a video for explaining complex medication information (Fan Cheng
and Orlagh McGarrity), a sickle cell superheroes animation (Dr Jane
Chudleigh) and a video to highlight the impact that a voice disorder can have
on children, young people and their families (Nicola Garb).
We had a jammed pack agenda with Professor Monica Lakhanpaul and Dr
Jenny Shand setting the scene for the day, drawing attention to the impact of
poverty on existing health inequalities and childhood mortality, and what can
be done at a systems level to tackle this. The importance of using data and
collaboration to turn research into action was highlighted.
Members of the Great Ormond Street Hospital Young People9s Forum
passionately talked about the importance of their views being heard and acted
upon. They talked in particular about the need for wider involvement of young
people in research, for better access to research information and opportunities
and to improve racial inequity in research.
Dr Phillip Harniess, a Senior Research fellow from GOSH and Caomhan
McGlinchley, an educational psychologist and researcher from the Childhood
Disability Research Unit in Exeter gave a joint presentation about improving
equity to health and well-being support programmes for socially and ethnically
diverse patient groups. They raised the profile of fathers in research and
highlighted the importance of individual and targeted recruitment to increase
reach, establishing trust, making it relevant, and tailoring approach to ensure
inclusivity. This session was followed by a presentation by Louise Parkes and
Waffa Grishab about the impact clinical trials have on children and young
people9s education, with data showing the significant numbers of school days
missed, impact on siblings and subsequent guilt felt by parents. Their vision
for the future includes a teacher within the clinical trials unit at GOSH, and
weekend opening to enable children to attend outside of school hours.
Thank you to Jules Scheele from www.katiechappell.com/live-illustration for
the illustrations.
The afternoon included a range of interesting talks focused on translating
research into practice using qualitative improvement methodology (Dr Pippa
Sipanoun), barriers associated with poor transplant outcome (Dr Ji Soo Kim),
barriers to including looked after children in research (Lauran O9Neill and Kate
Plant) and improving equity of care for patients of different skin tone (Liz Akers
and Lucy Turriff).
Our lightening talks focused on the inclusion of children with autism in selfreport (Abigail Mance), addressing inequities for children using non-invasive
ventilation (Jessica Russell), and improving inequity of service provision after
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